|
|
Northern Virginia
|
|
36,000 Americans are treated for brain tumors each year — 2,000 of whom are children.
Approximately 2.5 million suffer from epilepsy. (This number would be greater except that often this disorder is undiagnosed.)
Parkinson’s Disease afflicts 1 million of our population.
Acoustic Neuroma is a benign (non-cancerous) tissue growth that arises on the eighth cranial nerve. This nerve consists of three parts, one part associated with transmitting hearing and the other two with sending balance information to the brain from the inner ear. Learn more of this at:
Acoustic Neuroma Association provides information and support to patients who have been diagnosed with or experienced an acoustic neuroma or other benign problem affecting the cranial nerves. The association was patient founded in 1981.
Aphasia is an impairment of the ability to use or comprehend words, usually acquired as a result of a stroke or other brain injury. Links we recommend on this brain injury are:
National Aphasia Association, a nonprofit organization that promotes public education, research, rehabilitation and support services to assist people with aphasia and their families.
Aphasia Hope Foundation. Compiles and "fosters" scientific research along with the practical knowledge gained from the actual experiences of survivors, their families and their service provider.
Aneurysm and AVM
Aneurysms are dilations of a blood vessel (similar to a balloon) that poses a risk to health from the potential for rupture, clotting, or dissecting. Rupture of an aneurysm in the brain causes stroke, and rupture of an aneurysm in the abdomen causes shock.
Learn more about this brain injury at:The Aneurysm Information Project, a site maintained at Columbia University to acquire information on aneurysms. It includes frequently asked questions, personal folders, and a large number of links.
Aneurysm and AVM Support, provided as a public service by the State University of West Georgia, Carrollton, GA 30118, is a comprehensive site This site contain s many narratives from brain aneurysm survivors and family members. It also includes frequently asked questions on insurance and SSDI for survivors.
AVM stands for arteriovenous malformation is a cluster of abnormal arteries and veins. As the name suggests an arteriovenous malformation is made up of arterial and venous components. If the arterial wall is injured or deficient, as in an aneurysm, blood under pressure can escape from the vessel into the surrounding tissue causing a hemorrhage. You can find more information on this at the site maintained by:
Brain Arteriovenous Malformation (AVM) Center at Wake Forest University.
Brain Aneurysm and Arteriovenous Malformation Center at Massachusetts General Hospital.
Brain Tumors. 36,000 Americans are treated for brain tumors each year — 2,000 of whom are children. Links we recommend are:
Brain Tumor Society where you will find information, resources, frequently asked questions, events, bibliography, and additional web links.
National Brain Tumor Foundation, where you will find information, support and hope on brain tumors.
National Brain Tumor Foundation Web provides printed information about treatments or tumor types, helps you connect with other patients and caregivers, and provides links to find out about additional resources. The site includes
- Surviving a brain tumor
Connecting and Coping
Ask the Health Professional
What's New?
Publications and Newsletter
Link Library
Brain Tumor Society provides resources for patients, survivors, family, friends and professionals. The site includes basic information about brain tumors, patient and family resources, FAQs, links, a book list, and long-term survivorship stories. The Brain Tumor Society also sponsors teleconferences which users can join.
Epilepsy. Approximately 2.5 million Americans suffer from epilepsy. (This number would be greater except that often this disorder is undiagnosed.) 100,00 new cases of epilepsy develop nationwide each year. Approximately 56,000 residents of Virginia have this disorder. Epilepsy can develop at any time in a person's life. It affects people of all races in all nations. Links we have found are:
Epilepsy Foundation. The association is a national, charitable organization, founded in 1968 as the Epilepsy Foundation of America. It is the only such organization wholly dedicated to the welfare of people with epilepsy. The site provides information for children and adults affected by seizures through research, education, advocacy and service. The national association with offices in Landover, Maryland. The Virginia off ice is located in Charlottesville and may be reached at [804] 924-5401.
Epilepsy Contact Database. This site is sponsored by the Olivia Waddell Epilepsy Endowment Fund, and was developed to unite and educate those affected by and afflicted with epilepsy. It is intended to :
- unite parents and friends of those children who have epilepsy
- allow an open forum between those who have epilepsy
- increase funding for epilepsy education and research
- expose all interested individuals in the resourses and activities available to those who have epilepsy.
Parkinson’s Disease is a chronic, degenerative neurological disorder that exhibits itself in such symptoms as tremor, stiffness and slowness of movement. Parkinson's Disease afflicts 1 mil of our population. Links we recommend on this brain injury are:
The Parkinson's Web where information on various sites providing information on this brain injury can be found.
Parkinson's Disease Foundation was founded in 1957 to encourage and promote research into Parkinson's disease. The site contains much useful information on cause and cure for Parkinson's disease and related neurodegenerative disorders, early warning signs of the disease.
Parkinson's Disease Foundation is a national, non-profit organization, chartered in the state of New York with offices in New York City and Chicago. The PDF is dedicated to supporting and promoting the highest-quality research world-wide into the cause(s) and cure of Parkinson's disease, and for better symptomatic treatments
Shaken Baby Syndrome is a term used to describe the constellation of signs and symptoms resulting from violent shaking or shaking and impacting of the head of an infant or small child. Links we recommend on this brain injury are:
Shaken Baby Alliance provides support for SBS victim families (including adoptive and foster parents), advocates for justice for SBS victims, and increases SBS awareness. The alliance works collaboratively with all agencies and professionals in a community effort.
Shaken Baby Syndrome, a fact sheet on SBS (definition, scope and prevention).
Shaken Baby Syndrome National Information Support and Referral Service, a site sponsored by the National Center on Shaken Baby Syndrome (Formerly the Child Abuse Prevention Center) and SBS PREVENTION PLUS. It contains information and links on SBS.
Other sites:
American Speech-Language-Hearing Assn, or ASHA, is the professional, scientific, and credentialing association for more than 99,000 speech-language pathologists, audiologists, and speech, language, and hearing scientists in the United States and internationally. ASHA promotes the interests of and provide the highest quality services for professionals in audiology, speech-language pathology, and speech and hearing science, and advocates for people with communication disabilities.
Chronic Net is organized to give you access to the statistics, sources, and stories that can help you report chronic care issues at the national, state, and local levels. A special feature of ChronicNet is its searchable databases that bring together multiple resources, by topic area, to help you build stories including local and national experts.
Learning Disabilities Association of America is a national, non-profit, volunteer organization including individuals with learning disabilities, their families and professionals. LDA is dedicated to enhancing the quality of life for all individuals with learning disabilities and their families, to alleviating the restricting effects of learning disabilities, and to supporting endeavors to determine the causes of learning disabilities. LDA seeks to accomplish this through advocacy, education, research and service, and through collaborative efforts.
Neuro Optometric Rehabilitation Association (NORA) was established to provide direction of visual rehabilitation for optometrists, ophthalmologists, physicians, rehabilitation professionals, occupational therapists, educators, psychologists, nurses, etc. for the understanding and treatment of persons who have physical disabilities and/or traumatic brain injury. Our purpose is to expand awareness about the visual problems and needs of physically disabled persons and those who have had a traumatic brain injury.
Vestibular Disorders Association (VEDA) is a nonprofit organization that exists to provide information and support to people suffering from inner-ear balance disorders. Symptoms of vestibular disorders may include dizziness, imbalance, vertigo, nausea, and fuzzy vision, and may be accompanied by hearing problems. Other symptoms are often reported. About a half million people, including those who have visited this web site, have received information from VEDA since 1983.
National Organization of Rare Diseases is the only organization of its kind--a unique federation of more than 140 not-for-profit voluntary health organizations serving people with rare disorders and disabilities. Thousands of affected individuals and their families--as well as support groups, health care and human service professionals, and advocates for people with rare disorders and disabilities--rely on NORD's assistance and leadership. NORD is a charity and continues its mission through the kindness and generosity of its donors.
NVBIA-Home
Our
Association Information on
Brain Injury
Referrals
Support Groups "Journey"
Newsletters
Coming Events
Advocacy
Survivors' Corner
Prevention
Helping
Photos Links to governmental sites
NVBIA Helpline: [703] 569-1855
On the Internet: http://www.nvbia.org
E-mail: info-nvbia@nvbia.org
Or visit our office located at
Brain Injury Services
8136 Old Keene Mill Road, Suite B102, Springfield, VA 22152
Phone: 703-451-8881 ~ Fax: 703-451-8820
 |
Our United Way number is 9229. Please remember it when you contribute |
